Cystic fibrosis patients say they are struggling to buy medicines in Ukraine.
According to the Mayo Clinic: “Cystic fibrosis is an inherited disorder that causes severe damage to the lungs and digestive system. Although cystic fibrosis requires daily care, people with the condition are able to attend school and work, and have a better quality of life than in previous decades. Improvements in screening and treatments mean most people with cystic fibrosis now live into their 20s and 30s, and some are living into their 40s and 50s.”
At the Kyiv rally, about 30 people came to protest low budgets for cystic fibrosis sickness in 2016.Parents of children cystic fibrosis claim that in 2016 the state budget for medicines to treat this disease will be just Hr 4 billion in comparison with Hr 8 billion in 2015. The patients said that with such budget cuts they would suffocate, so as a symbolic act they brought a box decorated as a Christmas present with a gas mask and medicine, which they wanted to give to President Petro Poroshenko.