VIDEO
Five-year-old Kyra lives in Kyiv, Ukraine with her parents. She enjoys dancing and painting and is learning to do things for herself. “She always needs to be in motion. Not sitting around,” her mother, Nataliya Musyna, told Hromadske. But Kyra’s active and independent personality can also pose a risk, “She can’t fall, she can’t bump into anything,” explained Nataliya. “Kyra is the only one like this in Ukraine.”
Doctors diagnosed Kyra with progressive osseus heteroplasia (POH) when she was less than a year old. This rare genetic condition causes the body to form extra bone in places where bone should not form. For people with POH, falling or bumping into something can cause their skin to ossify.
