VIDEO
When Mykyta Chibizov was born it was clear something was wrong. As a baby he would cry all the time. For a long time Ukrainian doctors didn’t know what was wrong. They even encouraged his parents, Kateryna and Konstiantyn, to give him up. For them, this wasn’t an option. In 2015, German doctors finally diagnosed Mykyta with a disease so uncommon it affects only one in a million boys.
Hromadske spent the day with Mykyta and his family to find out what life is like dealing with this extremely rare condition and raising a disabled child in Ukraine, where healthcare service is one of the poorest on the continent.
